FOR IMMEDIATE RELEASE

January 12, 2000

California Lyme disease patients plan support meeting and demonstration in Ventura.

CONTACTS:

Barbara Barsocchini
Malibu, CA
310-456-3625 afternoons
LymeBarb@aol.com

Jonna Duff
Oxnard, CA
805-984-3248
midnight@vcnet.com

Art Doherty
Lompoc, CA
805-733-5253 (usually busy/on internet)
doherty@utech.net

CALIFORNIA LYME DISEASE PATIENTS MEET IN VENTURA ON JANUARY 19th TO DEMONSTRATE AGAINST SPEAKER AT CONFERENCE ON BACTERIA.

A meeting of Southern California Lyme patients and their friends will take place at the Holiday Inn, Ventura, California, on Wednesday, January 19, from 9 a.m. to 1 p.m. The patient support meeting, in the California Room on the first floor, will coincide with the Gordon Research Conference on Biology of the Spirochetes at the same location.

Allen Steere is scheduled to speak at 9 a.m. on the 19th, as part of the Gordon Conference - Steere's subject: "Autoimmune aspects of Lyme disease". Allen Steere, MD, who has been credited with "discovering" Lyme disease a quarter century ago, is a pivotal figure in Lyme disease research, known for promulgating a conservative ideology on the diagnosis and treatment of Lyme disease. Steere has given testimony against physicians who do not follow his stringent guidelines. His mantra is Lyme disease is "overdiagnosed and overtreated". Patients are turned away, denigrated publicly, denied adequate treatment and insurance coverage, and generally stigmatized as a result of these predominant beliefs; and their doctors have lost their licenses and medical practices.

Lyme disease, a tick-borne bacterial infection, is the second fastest growing infectious diseases in the US. With over 16,000 cases reported in 1998, the actual figure easily may be much more according to the CDC. Although publicized chiefly on the East coast, Lyme disease occurs nationwide, as well as, worldwide. There are many high risk areas for Lyme disease in California including northern, central, and southern California.

"Steere's "overdiagnosis and overtreatment" school of thought promotes narrow, ethically suspect viewpoints and medical guidelines which, more and more, ignore a growing body of scientific evidence and patient tragedy." - Marleen Oetzel, patient advocate.

[end of press release]



Other contacts and supporting information

The Gordon Conference:

Spirochete Conference Program, January 16-21, 2000, Ventura Holiday Inn http://dpalm.med.uth.tmc.edu/faculty/bios/norris/program2000.html

Holiday Inn
450 E. Harbor Blvd.
VENTURA, CA 93001
Phone: 800-842-0800
Directions to Ventura Holiday Inn
http://www.isle.net/~holiday/map.htm

Prior recent protest against Dr Steere:

Lyme patients protest the NIH honoring of Allen Steere, MD  as "Astute Clinician"
http://x-l.net/Lyme/conf/10.99.steere.protest.nih.html

Allen Steere testifies against Michigan physician:

State of Michigan in the Circuit Court for the County of Saginaw, Joseph Natole, Jr., M.D., Petitioner
http://lymealliance.org/Legal/Appeal/appeal.html

Centers for Disease Control and Prevention on the underreporting of Lyme disease:

CDC: Lyme Disease: "the disease is greatly underreported"
http://www.cdc.gov/ncidod/dvbid/lyme_QA.htm

CDC: Lyme Disease: "there is considerable underreporting"
http://www.cdc.gov/ncidod/dvbid/lymeepi.htm

CDC: "Two studies have shown that cases have been underreported ..."
http://www.cdc.gov/ncidod/EID/vol5no3/meltzer.htm

Lyme disease in California:

Lyme disease in California:
http://www.reocities.com/HotSprings/Spa/6772/california-index.html

U.S. Army Lyme Disease Risk Assessments in California:

Camp Pendleton, San Diego, CA - 1992
http://www.utech.net/users/10766/003.txt

Vandenberg Air Force Base, Lompoc, CA - 1995
http://www.utech.net/users/10766/005.txt

Other contacts:

Rita L. Stanley, Ph.D.
Portland, Oregon
ritastan@worldnet.att.net

Marleen Oetzel
Marleenoet@aol.com

Lyme Disease Foundation
Hartford, Connecticut
860-525-2000
lymefnd@aol.com

The following three web pages present scientific and medical information extracted from the National Library of Medicine MEDLINE citations supporting the viewpoints and treatment methods of Lyme disease knowledgeable physicians and the viewpoints of uncured but knowledgeable Lyme disease patients:

Persistence or Relapse of Lyme Disease - An Annotated Bibliography http://www.reocities.com/HotSprings/Oasis/6455/persistence-special.html

Long-Term or Repeated Antibiotic Therapy for Lyme Disease - An Annotated Bibliography http://www.reocities.com/HotSprings/Oasis/6455/therapy-special.html

Seronegative or False Negative Lyme disease - An Annotated Bibliography http://www.reocities.com/HotSprings/Oasis/6455/seronegative-special.html

Recent news articles on the Lyme disease controversy:

Patients to protest talk by Lyme disease discoverer, Boston Herald, 3 Nov 99 http://www.bostonherald.com/bostonherald/health/lyme11031999.htm

New Haven Advocate: Lyme Et Veritas, July 1999
http://www.newhavenadvocate.com/articles/lymedisease.html

The Dirty Truth Behind Lyme Disease Research, Fairfield Co. Weekly, 20 May 1999 http://www.fairfieldweekly.com/articles/lymedisease.html

For more information about Lyme disease, see:

Lyme Disease by Dr Joseph Burrascano, Conn's Current Therapy, 1997 (7 pages) http://www.reocities.com/HotSprings/Spa/6772/conns.txt

Lots Of Links On Lyme Disease (over 5,800 categorized links)
http://www.reocities.com/HotSprings/Oasis/6455/lyme-links.html



This page can be found at:

Press release: California Lyme disease patients plan meeting and demonstration in Ventura http://www.reocities.com/HotSprings/Oasis/6455/gordon-press-release.html

Last updated on 12 January 2000 by
Art Doherty
Lompoc, California
doherty@utech.net


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