FOR IMMEDIATE RELEASE
January 12, 2000
California Lyme disease patients plan support meeting and demonstration in Ventura.
805-733-5253 (usually busy/on internet)
CALIFORNIA LYME DISEASE PATIENTS MEET IN VENTURA ON JANUARY 19th TO
DEMONSTRATE AGAINST SPEAKER AT CONFERENCE ON BACTERIA.
A meeting of Southern California Lyme patients and their friends will
take place at the Holiday Inn, Ventura, California, on Wednesday,
January 19, from 9 a.m. to 1 p.m. The patient support meeting, in the
California Room on the first floor, will coincide with the Gordon
Research Conference on Biology of the Spirochetes at the same location.
Allen Steere is scheduled to speak at 9 a.m. on the 19th, as part of
the Gordon Conference - Steere's subject: "Autoimmune aspects of Lyme
disease". Allen Steere, MD, who has been credited with "discovering"
Lyme disease a quarter century ago, is a pivotal figure in Lyme disease
research, known for promulgating a conservative ideology on the
diagnosis and treatment of Lyme disease. Steere has given testimony
against physicians who do not follow his stringent guidelines. His
mantra is Lyme disease is "overdiagnosed and overtreated". Patients are
turned away, denigrated publicly, denied adequate treatment and
insurance coverage, and generally stigmatized as a result of these
predominant beliefs; and their doctors have lost their licenses and
Lyme disease, a tick-borne bacterial infection, is the second fastest
growing infectious diseases in the US. With over 16,000 cases reported
in 1998, the actual figure easily may be much more according to the CDC.
Although publicized chiefly on the East coast, Lyme disease occurs
nationwide, as well as, worldwide. There are many high risk areas for
Lyme disease in California including northern, central, and southern
"Steere's "overdiagnosis and overtreatment" school of thought promotes
narrow, ethically suspect viewpoints and medical guidelines which, more
and more, ignore a growing body of scientific evidence and patient
tragedy." - Marleen Oetzel, patient advocate.
[end of press release]
Other contacts and supporting information
The Gordon Conference:
Spirochete Conference Program, January 16-21, 2000, Ventura Holiday Inn
450 E. Harbor Blvd.
VENTURA, CA 93001
Directions to Ventura Holiday Inn
Prior recent protest against Dr Steere:
Lyme patients protest the NIH honoring of Allen Steere, MD
as "Astute Clinician"
Allen Steere testifies against Michigan physician:
State of Michigan in the Circuit Court for the County of Saginaw, Joseph Natole, Jr., M.D., Petitioner
Centers for Disease Control and Prevention on the underreporting of
CDC: Lyme Disease: "the disease is greatly underreported"
CDC: Lyme Disease: "there is considerable underreporting"
CDC: "Two studies have shown that cases have been underreported ..."
Lyme disease in California:
Lyme disease in California:
U.S. Army Lyme Disease Risk Assessments in California:
Camp Pendleton, San Diego, CA - 1992
Vandenberg Air Force Base, Lompoc, CA - 1995
Rita L. Stanley, Ph.D.
Lyme Disease Foundation
The following three web pages present scientific and medical information
extracted from the National Library of Medicine MEDLINE citations
supporting the viewpoints and treatment methods of Lyme disease
knowledgeable physicians and the viewpoints of uncured but knowledgeable
Lyme disease patients:
Persistence or Relapse of Lyme Disease - An Annotated Bibliography
Long-Term or Repeated Antibiotic Therapy for Lyme Disease -
An Annotated Bibliography
Seronegative or False Negative Lyme disease - An Annotated Bibliography
Recent news articles on the Lyme disease controversy:
Patients to protest talk by Lyme disease discoverer, Boston Herald, 3 Nov 99
New Haven Advocate: Lyme Et Veritas, July 1999
The Dirty Truth Behind Lyme Disease Research, Fairfield Co. Weekly, 20 May 1999
For more information about Lyme disease, see:
Lyme Disease by Dr Joseph Burrascano, Conn's Current Therapy, 1997 (7 pages)
Lots Of Links On Lyme Disease (over 5,800 categorized links)
This page can be found at:
Press release: California Lyme disease patients plan meeting and demonstration in Ventura
Last updated on 12 January 2000 by
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