This page lists links to clinics and practitioners: people who help (adult) people with CP. (Some overlap with the adults with cp page).

People

June Isaacson Kailes, Disability Policy Consultant

Places

Center for Cerebral Palsy Spasticity[St. Louis, Missouri]
Kelly Moffat writes:

This site is for the Center for Cerebral Palsy Spasticity where Dr. Park does the Selective Dorsal Rhizotomy Procedure
The CP Center at St. uis Children's does accept adults. The only stipulation is you must be motivated and committed to improving. The Director is Dr. Janice E. Brunstrom,MD she herself has CP. Right now she is not accepting new patients because the waiting list is so long. Her colleague Dr. Michael Noetzel, MD has follows the same philosophy, andI myself am a patient of his (I am 22.)If you are interested you may be able to get in with him sooner.

Gillette Introduces the Lifetime Specialty Care Clinic for Adults with Cerebral Palsy [St. Paul, Minnesota]
see Note 2

Spire Institute[Scottsdale, Arizona]
Does alternative therapies including hyperbaric oxygen.

Rehabilitation Center "Elita" [Lviv, Ukraine]

Center for Persons with Disabilities [Logan, Utah]

THE CENTRE OF THE CHILDREN WITH CP [Kaliningrad, Russia]

Center for Aging Persons with Developmental Disabilities (CAPDD)[Bloomington, IN]

U.S. Sports & Fitness Center for the Disabled [Springfield, IL]

Rehabilitation Research and Training Center
Rancho Los Amigos Medical Center
[Downey, CA]

NYU CP Center [New York, NY]

Miller-Dwan center [Duluth, MN]

Englewood Hospital and Medical Center [Englewood, NJ] see Note 1

G-therapy[Pune India]
This is an alternative treatment some people like


Opinions expressed here are personal and do not reflect the views of my employer.


Note 2:

I saw your web page nad have heard from many other adults with CP who agree there is little out there...but in Minnesota, USA, we are changing that. As of Oct 4, 2001, Gillette Children's Specialty Healthcare has opened the Lifetime Specialty Clinic, designed to provide specialized healthcare for adolescents and adults with cerebral palsy.

We have had patients come from over 1,000 miles away, so it seems there is a huge need for these types of services.

Our clinic is staffed by experts who have been a part of Gillette Children's Hospital, providing care for children with CP for over 100 years. We know all too well that kids with CP grow up to be adults with CP, and we worked hard to get other facilities to provide the specialized care that was required. We also provided care to those who could find no other place that understood what the issues with were.

John Barrett
Media Relations
Gillette Children's Specialty Healthcare
183 E. University Ave
St. Paul, MN 55101
Phone: 651-229-1723
Pager: 612-580-2192
FAX: 651-229-1737
e-mail


Note 1:

Considering the alternative . . aging with a disability is the only way to go!

Unfortunately, many people with disabilities, especially those who have been disabled since childhood, are developing "Post" syndromes.

The most well know is "Post-Polio Syndrome," where polio survivors develop new fatigue, muscle weakness, joint and muscle pain, cold intolerance and sleeping, swallowing and breathing problems about 35 years after they had polio.

However, people with other disabilities -- including spinal cord injury, amputation, Guillain-Barre Syndrome, spina bifida and cerebral palsy -- develop "post" syndromes after years of muscle and joint overuse caused by waking on weakened legs and using crutches or wheelchairs. These "aging" people with disabilities may only be 40, but feel like they’re 80, because of fatigue, muscle weakness, headaches and joint, muscle, back and neck pain.

The Aging and Disability Program has been developed as an extension of the world-famous Post-Polio Institute. The physician, occupational and physical therapists and nutritionists in the Department of Rehabilitation Medicine are specially trained to treat the "overuse-abuse" that comes with having a life-long disability. A therapy program will be specially designed for you to treat your pain, reduce weakness, help you lose weight and function better to help you and your disability age gracefully together.

Dr. Jerald R. Zimmerman
Chief, Department of Rehabilitation Medicine
Englewood Hospital and Medical Center
201-894-3707


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