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Name :   Dorothy
E-Mail :   anster8@att.net
From :   Hawaii
Age at Onset :   ?
Presenting Symptoms :   physical weakness fatigue depression
Worst Symptom :   this awful fatigue
Best Treatment :   ?
Your Comments :   think we all are having the same problems, every day is interesting. Just want the old me back.

Name :   cheri
E-Mail :   cgabrielse@dccnet.com
From :   Vancouver, Canada
Age at Onset :   31
Presenting Symptoms :   Numbness, fatigue, pain
Worst Symptom :   Sensation Overload
Best Treatment :   Apo-naproxen 500mg
Your Comments :   Crazy. . . but I would like to post questionnaire asking lifestyle/history questions - a laymans effort determine the cause of MS. Would you reply?

Name :   Peter Anderson
E-Mail :   peter@mswebpeople.com
From :   Melb/ Australia
Age at Onset :   38
Presenting Symptoms :   Numb foot
Worst Symptom :   Vision Failing
Best Treatment :   None
Your Comments :   Home page: http://www.mswebpeople.com/ All welcome :) Come and say GDay

Name :   Wendy
E-Mail :   thehouseofbirds@aol.com
From :   Virginia
Age at Onset :   40
Presenting Symptoms :   bladder control,fatigue,emotional , internal heat, left side of my face and body numb and in painful, partial wheel chair and cane useage
Worst Symptom :   left leg and foot pain and retaining heat.
Best Treatment :   steroids
Your Comments :   I have overwhelming heat intolerance. I have trouble with the left side of my body.I have had MS for over 4 years now and was first told that I had lyme diease. I have cognative and emotional problems.

Name :   Sandi
E-Mail :   e-mail me
From :   Cedar Lake,In.
Age at Onset :   37
Presenting Symptoms :   numbness in face, hands and limbs
Worst Symptom :   cramping in legs and feet
Best Treatment :   shared solutions.com exercise video & copaxone
Your Comments :   Finding a doctor that listened to me & would work with me. Until I found Dr. M. Prasad of Munster, In.,I began to believe my symptoms were all in my head. I have a MRI once a year/first being diagnosed with benign MS. You have to be completely honest with

Name :   Sandi
E-Mail :   E_Mail me
From :   Cedar Lake In.
Age at Onset :   37
Presenting Symptoms :   numbness in limbs and hands & face
Worst Symptom :   leg&feet cramping
Best Treatment :   exercise video from shared solutions.com & copaxone
Your Comments :   

Name :   Sandi
E-Mail :   E-Mail me
From :   sgphillips_46@msn.com
Age at Onset :   1991
Presenting Symptoms :   fatigue,numbness in hands &cramping in feet and legs
Worst Symptom :   feet & leg cramping
Best Treatment :   exercise video from shared solutions.com & using copaxone since march 03
Your Comments :   For me, finding a doctor that worked with me and listened. It took 5 until I found Dr. M. Prasad in Munster,In. My first diagnosis was benign MS. I have an MRI once a year. You must be totally honest with yourself & doctor if you want to live a more norma

Name :   Susie
E-Mail :   lbsm1999@yahoo.com
From :   Southern, California
Age at Onset :   48
Presenting Symptoms :   spasms
Worst Symptom :   not WALKING
Best Treatment :   Amantadine
Your Comments :   This MS is crap in my book...I wish they hurry up and find a cure and I want to be alive when they do.........

Name :   neil
E-Mail :   adele.booth@tesco.net
From :   halifax
Age at Onset :   23
Presenting Symptoms :   fatigue
Worst Symptom :   vestibular neuritis
Best Treatment :   steroids
Your Comments :   vestibular neuritis was orrile i couldnt move my head without getting dizzy and throwing up

Name :   Bill
E-Mail :   wacki56@aol.com
From :   St.Pete., Florida
Age at Onset :   
Presenting Symptoms :   
Worst Symptom :   
Best Treatment :   
Your Comments :   Great web site ! It deserves to be among the BEST . Please add your site to The Worlds Top Personal MS Web sites at : http://new.topsitelists.com/world/wacki56/ wed love to have you , and ALL your contacts help spread the word . OH.........did I men

Name :   Susie
E-Mail :   lbsm1999@yahoo.com
From :   California
Age at Onset :   26
Presenting Symptoms :   looking double in one eye
Worst Symptom :   spasms
Best Treatment :   Amantadine
Your Comments :   I have my ups and downs with this crap and hopefully Im around when they find a cure.

Name :   Ms. Suwan Limsumphan
E-Mail :   daengsuwan@hotmail.com
From :   Thailand
Age at Onset :   41
Presenting Symptoms :   feeling leg stiff, fatigue,headache
Worst Symptom :   cannot walk, deceiving eyes,cannot raise hand
Best Treatment :   I am not sure the treatment from doctor because the doctors always provide the steroid medicine and it has many side effected to my health.
Your Comments :   Please help me to understand this disease and how I can get the better treatment.

Name :   Bonita M Quesinberry, R.C.
E-Mail :   unicornhaven@earthlink.net
From :   Oregon
Age at Onset :   
Presenting Symptoms :   
Worst Symptom :   
Best Treatment :   Herbal
Your Comments :   Oops. This doesnt allow many words. Please do come visit my website at http://www.reocities.com/pen_for_god. Hope to see you there.

Name :   Bonita M Quesinberry, R.C.
E-Mail :   unicornhaven@earthlink.net
From :   Oregon
Age at Onset :   12+/-yo
Presenting Symptoms :   All
Worst Symptom :   Pain
Best Treatment :   Herbal
Your Comments :   You have a great and informative website. MS, for me, is compounded by Lupus, Fibromyalgia, brain damage due to injury, degenerative vascular disease, and a host of other complications. But! While meds tended to escalate a downward spiral, herbs seem to k

Name :   kellie
E-Mail :   hellkell1@bigpond.com
From :   sydney,Australia
Age at Onset :   41- suspect earlier? 35
Presenting Symptoms :   drag right leg,foot drop,numbness,bladder frequency,extreme fatigue,double vision,neuritis,severe depression,body weakness.terrible balance,cognitive and memory problems
Worst Symptom :   cant go on
Best Treatment :   terrified of side effects , Dr said nothing as yet depression too bad,may deepen that which is all consuming.
Your Comments :   I got diagnosed 3 weeks ago. I live alone and fight this battle pretty much alone. Found 9 lesions brain and spine, terrified. I have had 2 attacks in 10 months,first left my right foot and leg permanently damaged. I can walk very short distance before ex

Name :   Beth
E-Mail :   
From :   Virginia
Age at Onset :   30
Presenting Symptoms :   Optic Neuritis
Worst Symptom :   fatigue
Best Treatment :   prayer-faith in God
Your Comments :   Mother of 4 children,homeschooler,teen ministry leader,,I only make it with Gods help-anyone can stay positive even with limited capabilities if you rely on the Lord!

Name :   Mindy Smith
E-Mail :   calliepayton@aol.com
From :   Tulsa, Ok
Age at Onset :   28
Presenting Symptoms :   Neurogenic Bladder, numbness, fatigue, pain, hyper-reflexes
Worst Symptom :   Neurogenic bladder and neuropathic pain
Best Treatment :   Non Yet
Your Comments :   I was recenlty diagnosed with Neurogenic bladder, bowel and demeylination disease. MRI all normal. This is frustrating. Please help

Name :   Kristina ALexander
E-Mail :   alxk228@datasync.com
From :   poplarville
Age at Onset :   43
Presenting Symptoms :   
Worst Symptom :   
Best Treatment :   
Your Comments :   I was in a semi truck accident in Dec. 2002. In march 2003, I had an MRI done that show Lesions in my brain that the doctor is telling me is possible from MS. I know nothing about this condition. I really dont know what to do. I have another MRI, in June.

Name :   Mary Ward
E-Mail :   maryward@austin.rr.com
From :   Austin, Texas
Age at Onset :   30 something
Presenting Symptoms :   Optic neuritis
Worst Symptom :   blindness
Best Treatment :   Being left alone!!!
Your Comments :   Well, Im not the MSer, my husband is. Weve been through a couple of Interferons and several Prednisolone treatments, all of which have reminded us that as bad as things are, you can get worse if you do the right thing and do what the doctors say. Just dis

Name :   Kara
E-Mail :   kfoulk@yahoo.com
From :   Ohio
Age at Onset :   23
Presenting Symptoms :   heavy leg after working out
Worst Symptom :   numbness in right leg (still have feeling though)
Best Treatment :   none
Your Comments :   Found out in University that I had MS. They thought it was a pinched nerve to begin with since I only had numbness in my rt leg and arm. A 2nd MRI and spinal tap confirmed my Doctors thoughts. At that time there were no medications to go on and he said th

Name :   jeff
E-Mail :   jfw@ellijay.com
From :   self
Age at Onset :   35
Presenting Symptoms :   fatigue,eyesite,pain
Worst Symptom :   fatigue
Best Treatment :   copaxone
Your Comments :   pleae e-mail me and let me know more about your own situation PLEASE111111111111

Name :   Julie
E-Mail :   SINGLEMOM3911@MSN.COM
From :   DES MOINES
Age at Onset :   30
Presenting Symptoms :   TINGLING IN LIMBS
Worst Symptom :   FATIGUE
Best Treatment :   COPAXONE
Your Comments :   

Name :   Susan
E-Mail :   aries31@bellsouth.net
From :   Georgia
Age at Onset :   30
Presenting Symptoms :   blurried vision, in Rt.eye, dragging Rt leg, numbness & tingling in all finger tips
Worst Symptom :   Numbness & Pain in back and trunk area
Best Treatment :   steroids
Your Comments :   Lately it seems when one symptom gets better, another comes. It is scarey going to bed, and thinking what will tomorrow will be like?

Name :   Penny
E-Mail :   sixcents@pennswood.net
From :   Pennslvania
Age at Onset :   41
Presenting Symptoms :   total body numbness, fatigue, cognitive problems
Worst Symptom :   fatigue
Best Treatment :   none yet
Your Comments :   Have progressed to heavy limbs, cramping, burning, dizziness as well. I just want to know whats wrong and if I can be treated.

Name :   melody
E-Mail :   prissy01@alltel.net
From :   ohip
Age at Onset :   dont know/und/x
Presenting Symptoms :   numbness,fatiuge,memoryloss,blurred and double vision
Worst Symptom :   fatiuge
Best Treatment :   none yet
Your Comments :   i have been ill going on two years cant get a d/x, have leisions, but spinal neg. it has cost me my job as i no longer can work or drive very often. very hard limbo land

Name :   S Brown
E-Mail :   cartnrams@aol.com
From :   
Age at Onset :   37
Presenting Symptoms :   fatigue, unsteady gate
Worst Symptom :   fatigue
Best Treatment :   Rebif
Your Comments :   Havent felt this good in two years after diagnosis! I started with Avonex, continued with relapses requiring IV treatments, paralysis, loss of vision, switched to Betaseron with same results. My neurologist offered Rebif after MRI, in only a six months pe

Name :   Eeva
E-Mail :   skye98@luukku.com
From :   Finland
Age at Onset :   32
Presenting Symptoms :   walking difficulties,balace difficulties,bladder problems etc.
Worst Symptom :   when I couldnt speak for 2 months
Best Treatment :   betaferon
Your Comments :   

Name :   Michel
E-Mail :   whatms@aol.com
From :   
Age at Onset :   35
Presenting Symptoms :   Numbness,tingling,disorienation,neurogenic bladder,atrophy
Worst Symptom :   Disorientation,bladder,cognitive
Best Treatment :   Betaseron,Swimming
Your Comments :   Glen-What a great site. Well done and a great resource

Name :   debbie
E-Mail :   rabfamily@enter.net
From :   usa pa
Age at Onset :   41
Presenting Symptoms :   leg pain
Worst Symptom :   cant walk
Best Treatment :   avonex
Your Comments :   i was just dx 15 months ago ..anybody that has infor .that can help me and my family please e-mail it to me .thank you debbie

Name :   Cari
E-Mail :   Conger-Eldeen
From :   Colorado
Age at Onset :   31
Presenting Symptoms :   Optic Neuritis and fatigue
Worst Symptom :   double vision and left side weakness
Best Treatment :   Dont know yet
Your Comments :   Finally diagnosed about 10 years and lots of tears. On Copaxone and feeling better. Still fighting the fatigue and looking for something that will work.

Name :   Peter Anderson
E-Mail :   peter@mswebpeople.com
From :   pa
Age at Onset :   39
Presenting Symptoms :   Numbness in toes
Worst Symptom :   Rapid Decline
Best Treatment :   Ha !
Your Comments :   Now classed as PP. Retired as a result of disability. Now reliant on a manual wheel chair. I have recently changed my site (again !!) *lol* and found myself visiting yours again. I know how much work I put into http://www.mswebpeople.com, and I am amaz

Name :   \/inzą
E-Mail :   spooge@spl.at
From :   S California
Age at Onset :   39
Presenting Symptoms :   Severe numbness of both hands
Worst Symptom :   loss of bladder control, near paralysis of legs, bladder infections,
Best Treatment :   Prednisol Intravenious, Gabapentin 300mg/ day, Avonex
Your Comments :   I am treated by the Veterans Administration. World Claas Doctors. All medications provided. Presently finances are my greatest challenge. SSI is monsterous. I am unable to work.

Name :   Sheila
E-Mail :   sullivan1948@earthlink.net
From :   florida
Age at Onset :   54
Presenting Symptoms :   numbness,weakness in legs
Worst Symptom :   constant ache in legs
Best Treatment :   rebif
Your Comments :   Diagnosed is May 02. But I think that I have had it for several years

Name :   Jim
E-Mail :   jim_bolton5@hotmail.com
From :   USA
Age at Onset :   25
Presenting Symptoms :   numbness in legs, Optic Neuritis
Worst Symptom :   difficulty walking
Best Treatment :   Avonex & Prednisone
Your Comments :   I was diagnosed with Multiple Sclerosis in 1993 while serving in the Army overseas. In 1997, my medical history caught up with me and my military career ended. http://clik.to/MSjim On this page, you will find many helpful links to learn more about MS and

Name :   Joanna Chism
E-Mail :   rchism@hotmail.com
From :   
Age at Onset :   20
Presenting Symptoms :   opticneuritis
Worst Symptom :   lack of balance
Best Treatment :   fruit & vegitables
Your Comments :   avoid colesterol& fat

Name :   peter maroney
E-Mail :   edpeter@netzero.net
From :   1980
Age at Onset :   30
Presenting Symptoms :   numness
Worst Symptom :   paralized from neck gown
Best Treatment :   betaseron
Your Comments :   i have been in a nursing home for 10 years. I guess you can learn to live under any conditions if you have to. You do what you have to.

Name :   Lynn
E-Mail :   mspatient@adelphia.net
From :   Cleveland
Age at Onset :   34
Presenting Symptoms :   Lost most sight in right eye, went totaly blind for a week
Worst Symptom :   Cant stand up dizy and in severe pain all mucles
Best Treatment :   IV steroids
Your Comments :   I'm 59 now and have been coping until now. I am having trouble with thought process, and rembering things. Speach at times. Lots of muscle pain. Arms go numb and hurt. Leg cramps etc... Have lost jobs and Insurance not, trying to survive, Disability state

Name :   Lynn
E-Mail :   mspatient@adelphia.net
From :   Cleveland
Age at Onset :   34
Presenting Symptoms :   Lost most sight in right eye, went totaly blind for a week
Worst Symptom :   Cant stand up dizy and in severe pain all mucles
Best Treatment :   IV steroids
Your Comments :   I'm 59 now and have been coping until now. I am having trouble with thought process, and rembering things. Speach at times. Lots of muscle pain. Arms go numb and hurt. Leg cramps etc...

Name :   Catherine Bond
E-Mail :   the_bond68@hotmail.com
From :   Maryland
Age at Onset :   40
Presenting Symptoms :   unsure
Worst Symptom :   unsure
Best Treatment :   unsure
Your Comments :   I am just learning about MS. I was adopted and I have learned that my maternal grandmother was diagnosed in 1964 with MS.Being that for 31 years I have had no medical history this was shocking for me to find out.I am trying to locate my birth family to le

Name :   LOUISE
E-Mail :   lancaster@wol.co.za
From :   KWAZULU NATAL SOUTH AFRICA
Age at Onset :   31
Presenting Symptoms :   MEMORY LOSS, FATIGUE, BLADDER PROBLEMS AND MANY MORE
Worst Symptom :   MEMORY LOSS
Best Treatment :   REBIF
Your Comments :   LIVE FOR TODAY, SIMPLIFY YOUR LIFE, SEEK INFORMATION, RELY ON GOOD FRIENDS, ALWAYS BE POSITIVE!!!!!!!!!!!!!!!

Name :   Luis
E-Mail :   lmn2gki@aol.com
From :   Hoboken NJ USA
Age at Onset :   39 yers old
Presenting Symptoms :   slurred speech, frequent falls
Worst Symptom :   losing balance
Best Treatment :   none---so far
Your Comments :   1946-47 poliovirus 1973 prob.MS 1976 def. MS 1990 chron.prog.MS 2000 post polio syndrome Retired teacher of mathematics. Having problems in concentrating and at the present time having much problem in walking less than 10' using a power wheelchair

Name :   Erin
E-Mail :   haloseve@aol.com
From :   Boston, Ma
Age at Onset :   34
Presenting Symptoms :   numbness in feet, fatigue, slurred speech
Worst Symptom :   Fatigue!
Best Treatment :   Looking at options now
Your Comments :   What I find most frustrating is dealing with co-workers who look at me as if I'm smoking dope on the job lol. Sometimes in the afternoon I poop out and I talk slower or it takes me a second to register what people are saying to me. They are aware of my di

Name :   Rhonda
E-Mail :   rkearney@execulink.com
From :   Ontario
Age at Onset :   36
Presenting Symptoms :   numbness on left side to shoulder
Worst Symptom :   same
Best Treatment :   unknown
Your Comments :   I've been perusing this site since July when the numbness started. It has since disappeared but the MRI showed four spots and I'm scared to death. I'm in Limboland and I can't say as I like it much. I have my first appt at the local MS Clinic in November

Name :   mihaela
E-Mail :   mmirosanu2002@yahoo.com
From :   romania
Age at Onset :   35
Presenting Symptoms :   disorder
Worst Symptom :   
Best Treatment :   Betaferon
Your Comments :   

Name :   jan wolfgang doerffel
E-Mail :   jan@jandoerffel.de
From :   germany
Age at Onset :   17
Presenting Symptoms :   Blurry vision, Weakness, Vertigo, Tremor, Sleepyness
Worst Symptom :   Bilateral chronic Optic Neuritis
Best Treatment :   High-dose Dexametasone 1000mg daily i.V.
Your Comments :   This is a great and important site on the web for MSers. Unfortunately we don't have a thing like that in germany :-)) Greetings from Jan http://www.jandoerffel.de

Name :   hester
E-Mail :   h.holmes@sympatio.ca
From :   hester holmes
Age at Onset :   around 50
Presenting Symptoms :   leg weakness
Worst Symptom :   hard to walk
Best Treatment :   none
Your Comments :   I have just turned 60 and the Doctors say i have had m.s. for years. i have been having problems since i was 50 but the doctors could'nt find anything wrong with me and now i am trying to deal with this?

Name :   wendy
E-Mail :   ronnyreddz@yahoo.com
From :   2002
Age at Onset :   30+
Presenting Symptoms :   have had weakness, tingling, memory loss, pain, many others . .
Worst Symptom :   fatigue, slurred speech, cognitive functions
Best Treatment :   exercise - good nutrition
Your Comments :   Have not been diagnosed. Have been to two neorologists. Doctor says I am depressed. Antidepressants making tremors worse. Fatigue still present, worse. Memory loss and loss of muscle function in legs. I used to run four miles a day. Now some days I am luc






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